A NEW YEAR
posted on 01/13/2009
I hope this finds everyone well and we hope that all of you had a wonderful holiday and new year. Alex has continued to stay off the vent for a full month. We went to see the pulmonologist today and he was very pleased with the progress. On Thursday Alex will have a bronch done which is a camera inserted through the trach and down his trachea to see how things look. If things continue to go well we will discuss capping the trach and trying a nasal cannula again, if not then we will contine with the trach, but NO VENT!! Alex and Walker both had a wonderful Christmas and Alex is definitely acting like a spoiled rotten 2 year old. He walks, talks, signs and throws huge temper tantrums and gets time out at least once a day. We still aren't having much progress with eating, but at least he still gaining weight. Some of Alex's new words are blue, red, yellow, wait, look, mommy, daddy, bubba, yes and a few others here and there. He knows what the tv remote is and does and points and screams for the cartoons. He has become quite the little stinker.
I will try to remember to update this a little more often or as a little 5 and 2 year old allow. Lots of love to all and take care.
