Bailey Andrew Louis Marshall

JOURNAL

08/01/2006

1234Bailey continues to make good progress. His colour is coming through and the jaundice seems to be leaving him. He was stable enough to be moved within the the ward which, we have been told, is a good sign. The infection, or infections he has still cause some concern, but we can take some assurance from knowing that he has been treated for them from the moment that infection was suspected. A lumbar puncture was attempted, but the fighter that he is he wouldn't let them and it was abandoned, and although we won't have the results of what it would have found, we know that he didn't have to put up with the pain of the procedure, or run the risk of any complications from it.

Bailey is now taking a full feed of expressed milk from Michelle, 6ml every two hours which is excellent considering that the doctor said he wouldn't be feeding him for at least a week! He began feeding a few days ago on 0.5 ml every four hours and his feeding is going from strength to strength.

Michelle and I visited Bailey today at a different time from the usual and he must have been surprised because instead of sleeping through it, he was looking at us for a lot of the time we were with him.



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07/01/2006

1234Doctors confirmed today that the infections are definitely e-coli and possibly meningitis in addition. They have been treating him for both infections since they became suspicious that he might have them.

Bailey is making good progress with his jaundice, it seems to be leaving him fairly quickly. He now has pink ears, hands and feet. His lower legs are beginning to change back to pink and he has a few pink patches on his upper body. He is feeding well and tolerating the increases in his feed, on Wednesday he taking 0.5 ml every 4 hours and now he is up to 3ml every 3 hours.



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06/01/2006

1234As we entered the ICU on this day the microbiologist phoned the ward to say that tests done on Bailey had shown up infection that may have been causing liver and lung problems. The next day or so should bring more definite information.

I read Bailey his first story, and apart from raising his eyebrows from time to time he ignored me and slept through it all. We aren't sure how well his eyes can focus yet but there seemed to be lots of eye contact between us, especially when we spoke to him.

Bailey is back to his old self again, he kicks and punches when he is being worked on but he always complies in the end. He just needs to show his spirit and then settles to what needs to be done. Wisdom after five days! He's been here before I think.



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05/01/2006

1234Michelle was discharged from hospital today. It was a very tough day for her because she would be coming home and leaving our boy in the hospital. Before we left the hospital we went to see Bailey and we got the shock of our lives. Bailey's incubator was surrounded by doctors and other staff. When they saw us, one of the doctors broke away from the group and met us before we got to Baileys area. He told us that when Bailey's breathing tube was being suctioned out there had been some blood on the suction pipe and this was a worrying sign. They were not completely certain why the blood was there, it could have been old blood which had pooled in his lungs from the initial trauma of intubation, or it could be fresh blood from a fresh trauma, at this stage they simply could not tell. The doctors had listened to Bailey's breathing and to them it sounded like one lung was getting a better supply of air than the other. To remedy this they repositioned his breathing tube so that there was a clear gap between the end of the tube and the branch from which his lungs separated. At the time we went into the ICU they were waiting for an X-Ray to confirm the position of tube now it had been moved. The doctor assured us that the situation would be closely monitored and any adjustments needed would be made. He also told us that this kind of thing was very common in very small babies and that it was 'worrysome' for the staff. In other words it was a serious turn of events and only time would tell what the outcome would be.

Leaving Bailey to come home that day was extremely hard now that we knew that he was in real danger for the first time. The honeymoon period was very much over.



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02/01/2006

1234Bailey was stiill on photo therapy and now his colour was beginning to change from the redddish pink he had been to a darkening yellow. On his head he wore a protective shade, which on most babies just covered the eyes, but Bailey was so small that this mask enclosed his whole head. Aside from this we were told that Bailey was still doing very well and not giving any cause for concern.


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01/01/2006

1234Bailey had to have photo therapy under what was to all intents and purposes a sun lamp. He had shown signs of the onset of jaundice and the lamp was set up to break down some of the factors which brought on jaundice. His ventilation was good and the machine was set to a low level both in the frequency of his respirations and the oxygen content in the air he breathed.


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31/12/2005



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30/12/2005

In the morning, the consultant did another scan and some other tests were done to confirm the findings of the previous night, and at the conclusion of these tests, Michelle was admitted to the Ulster Hospital and immediately transferred to the Royal Jubilee Maternity Services Hospital in Belfast where we were eventually told what the cause of the problem was. Michelle had pre-eclampsiawhich is very dangerous, and potentially fatal to both mother and babyif it is not caught early enough. This was coupled with an umbilical cord that was not functioning properly, due to the high blood pressure. The Doppler scan showed that the cord was supplying a reduced flow of nutrients and oxygenated blood to the baby and at some stages the flow was reversed and was actually taking from the baby. The decision was made, the baby had to be delivered or it would certainly die within a day or two, and Michelle might go the same way if the problem was not resolved.

Michelle was taken to a room in the delivery suite and made as comfortable as possible. A steady stream of midwives and doctors came to see her to monitor her blood pressure and the heart rythym of the baby within her. While this was going on, various other doctors and midwives came to prepare her for what would happen the following day and brief her on the procedures. She was also given steroid injections to help mature the baby's lungs in preparation for the delivery and both of the injections were very painful for her.

Lenore, Michelle's sister came with an overnight bag packed full of the things that Michelle needed immediately and after staying to try to calm Michelle's nerves she left for home and more bag packing so that Michelle would have all the things she would have all the things she would need for a stay in hospital lasting a few days.

The staff went to great lengths to explain to us that our baby was not happy in the womb and the best chance it had for survival was to be delivered and that they would do everything they could for it. They hid nothing from us, our baby would be very small and many small babies do not survive the first few hours. A doctor came to see us from the Neonatal Intensive Care Unit to explain to us what their role in the baby's care would be, and to invite us up to see their ward. She was very helpful and came across as very competent and dedicated. When she was pushed she said that the baby, as it looked to her, had around a 40% chance of survival, with major complications, such as chronic lung disease, brain damage and the like.

At any other time this news would have probably come as a huge blow, but with everything that had happened in the last 36 hours we were in such a state of shock and tiredness already that the enormity of what the doctor was telling us didn't really sink in. We heard the words and understood what they meant, but it didn't affect us in the way we would have expected. After an hour or so, we decided that we should make a visit to the intensive care unit to see what kind of environment we could expect our baby to be living in when it was born. When the doors to the unit were opened we were met with a world of machinery and technology we could not hope to understand. In the ward there are around 20 incubators, each with an array of monitors, screens and drips all attached to the baby in the incubator. The staff told us not to worry about the alarms that sounded constantly, but everyone of them sounded serious and seemed to signal the end of the world. The reactions of the staff reassured us a little. Everyone was calm and not at all flustered, there was never any panic. with hindsight it was easy to see why, the staff in the ICU spend all day every day in that enviroment and are able to tell what each alarm means. We didn't know it then but the alarms have adjustable limits and even sound if the monitors are recording are too good. Not every alarm is a bad alarm, and most alarms signal a problem that is easily remidied. An example of this would be the alarm of the ventilator. Every so often the alarm will sound to tell the nurse that there is high pressure in the air of the ventilator, but this is almost always caused by water condensing in the coupling of the exhalation pipe and the moisture trap. The procedure to correct this seems to be to uncouple the trap from the pipe and to shake out the water. They then cancel the alarm and reset it again and all is well.

With our visit to the ICU over we returned to the delivery suite where we made preperations to settle down for the night. Michelle, obviously was in her hospital bed and I, having been given unofficial permission to stay the night, settled as best I could across some chairs of varying heights. Surprisingly Michelle and I had a decent nights sleep and awoke to find the hospital routine had been running for some time, even though it was before 7am.



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