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QUICK STATS: Born: 08/20/2007  Time: 09:23 am    Place: Sibley Memorial Hospital   Weight: 7 lbs 6 oz   Length: 19 1/2 in
BENNETT MITCHELL SPECK

JOURNAL

Jackson Stafford Speck
posted on 01/06/2011

Well, here I am, two months late, announcing Jackson's arrival!  It has been wild and joyous two months....not much sleep happening here, but that is okay :).

Jackson was born on November 2, 2010 at 8:28 am and he was 8 lb. 4 oz. and 19 inches.  His name pays tribute to the great state of Tennesee's president, Andrew Jackson, and my (Kelly) maternal grandfather, George Stafford West.

Jackson is a sweet, sweet baby, loves to be held and talked to, will coo and smile at you for as long as you coo at him :), and is overall a true joy.  Bennett has transitioned beautifully to big-brotherhood and the two of them have even had a few "conversations" themselves.  

Bennett is now going to school Monday-Friday from 9 am - 2 pm at our county's school for disabled children, and it has been a GOD SEND.  His teacher is fabulous, the ratio of teachers to students is almost 1:1, he receives all this therapies there (PT, OT, Speech), goes to library, art, PE, computer time, and even swims in a heated therapy pool twice a week!  It has been such a blessing and the boy is ONE TIRED WILD MAN each afternoon when he gets home....they work him hard and he is ready for bed by 7 pm (which is quite different from his previous 9 pm+ bedtime).

We are thankful to God for all that he has blessed us with when it comes to these two precious boys.  Our hearts are full! 



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Finally an update: Location change!
posted on 10/20/2010

I am sooooo sorry for the lack of updates- there are lots of reasons, the main ones being: #1 getting ready for baby boy's arrival on Nov 2nd (if he does not decide to come before then!), #2 technical difficulties with the website and #3 a move back to the DC area!!!

We had a very eventful summer that included travel to Florida, Michigan, Virginia, and then a move back to Bethesda, MD for Travis to return to work at the NIH.  He has a fantastic team at the NIH, we are living very close to his work (to avoid the horrendous traffic!), and of course our VA family is thrilled to have us back in the area.  It was very, very sad to say goodbye to our family, friends, church, house, and community in Tennessee; but it became clear to us that this move was what was best for our family and Travis' career, so the decision was made and 6 weeks later we were back!  We fully admit that God's plan is clearly better than the plans that we try to make :).

Bennett has done fabulously during this time of transition and has had a very healthy summer and fall~ we are so, so thankful for this and never take his health for granted.  He is a happy, sweet, funny little boy who has become quite the social man who likes to "be on the go" and gets a little stir-crazy if we stay in the house too much...so different from his baby days when he didn't like to leave the four walls of his room!  We adore him more with each passing day and cannot wait to soon introduce him to his baby brother :). 



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Bennett the big brother
posted on 07/31/2010

The big news around here is that Bennett is going to have a little brother due in late October/early November, Lord willing.  We are so happy that he is going to have a brother....now if we could only agree on a name :).

 

It has been a good summer for Bennett thus far- it is usually our healthiest time of year since there aren't too many bugs going around; so we try to savor every moment of good health and happiness.

 

Bennett has a big third birthday coming up soon, so we will soon be sure to reflect on the precious three years of life we have had with our boy!  Thank you for your prayers, encouragement and love along our journey.



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Bennett was the Walk-a-thon WINNER
posted on 05/26/2010

Thank you to all our supporters on this year's High Hopes Walk-a-thon!!! 

We found out today that Bennett was the top fundraiser of all the High Hopes kiddies, so we say THANK YOU from the bottom of our hearts!!!

Once we know the final total I will update this, but I just wanted to share the good news and thank eveyrone for their generosity, love and support. 

High Hopes is a truly amazing place and it is generous hearts that keep them open and providing services to children of ALL needs.

God bless!!!



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Bennett's Walk-a-thon
posted on 05/06/2010

Bennett's inclusive pre-school, High Hopes, is hosting a Walk-a-thon on Monday, May 24, 2010!

If you are wondering what an "inclusive" pre-school is, here is an excerpt from their website:

Since 1984, High Hopes has offered a specialized approach for educating children with and without special needs by combining speech, occupational, and physical therapy into the educational setting of the preschool classroom.  Children with Down Syndrome, Cerebral Palsy, Autism, speech & language disorders, and other developmental delays play, learn, and grow alongside their typically developing peers. 

High Hopes is a very, very special place and has been a true place of support and refuge for our family since we moved to Tennessee.  Bennett started off there in February 2009 getting PT, OT & Speech Therapy, and then in August 2009 he began attending pre-school there on MWF.  He has really expanded his social interaction, tolerance for new things :), and over-all acclimation to the world!  We are beyond thankful for High Hopes.

High Hopes has asked that each child who is participating in the Walk-a-thon to get 10 sponsors to donate $10 and we feel sure that we can meet this goal!  Bennett will either be riding his bike or riding in his chair along the route (if he used his gait trainer he would take some steps, but we might be there all night!).

If you are interested in supporting Bennett in this latest venture, please mail your tax-deductible check (it can be any amount- does not have to be $10) by Friday, May 14th to:

High Hopes, Inc. 1647 Mallory Lane, Ste. 103, Brentwood, TN 37027

In the MEMO line, please write Walk-a-thon 2010: Bennett Speck

Thank you!!!!!!!!!!!!!!!!!!!!!!!!!!!!

 

 

 



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Join us on Facebook
posted on 03/17/2010

Things have been good here, minus many-a-sleepless-nights due to changes in B's seizure meds, but after 2.5 months of little sleep, we think we have finally figured it out (Lord willing!).

We are not sure how much longer we will keeping up this website, so we wanted to let you know that we (ok, I, Kelly) have finally joined the Facebook phenomena and will definitely have pics and updates happening there.  Please feel free to send us a request if you would like to follow along our wild journey (even if we don't "know" you, just send us a message that you have followed B's journey and we will be happy to add you as a friend).

Spring is almost here, so we hope that you have survived this crazy LONG and COLD winter.  We are definitely ready to get Bennett loaded on his bike every day and tear apart the streets of Franklin :).



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Overdue post
posted on 01/23/2010

Happy 2010 to all!

We have had a crazy January, with lots of little virus' here and there (most recently a week of really bad asthma and coughing for Bennett), but other than that we are good.

The biggest praise we have is that this week we were put on a new seizure medicine ZONEGRAN (by our neurologist) and it has DRAMATICALLY decreased the amount of seizures B has been having each day.  Previously, he could have as many as 5-10 seizures per waking hour, depending on how active or startled he was that day. 

Since Monday of this week we can maybe count ON ONE HAND how many total seizures we have noticed.  We are beyond thankful to God for this positive news.  I (Kelly) have prayed multiple times a day "Dear God, please take away our baby's seizures" or prayed with Bennett "Dear God, please take away my seizures" and I feel like this is a DIRECT answered prayer.  Thank you, Lord!

Other than that, we are taking one day at a time and trying to survive the sickness that each winter seems to bring.  We wish you all the best and thank you, once again, for you prayers.



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Please pray for Helen and her family
posted on 01/03/2010

This link is for a precious baby girl named Helen who is currently hanging onto life at the Georgetown NICU.  Her mommy is actually a NICU nurse there and was always so kind to us when we were there. 

Please lift up this family in prayer!!!!!!!!!!!

http://www.caringbridge.org/visit/helengraceallison



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