Summer 2009
posted on 06/18/2009
Happy summer to everyone! The heat and storms in TN are pretty intense at times, but we are really loving the quiet life here.
Bennett's lungs have continued to stay healthy and we are so, so, so thankful for this. Bennett's neurologist has increased his Topamax dosages each day in hopes of knocking out his seizures and we are slowly weaning off of Phenobarbital because that med seems to be doing very little for his seizures.
The Botox in his arms went well and really helped us to get better stretches on his arms; but he wasn't getting that much greater use out of his arms (and was actually more floppy than ever) so we are going to do more Botox injections in about 6 months. This is in hopes to keep some "looseness" going and to hopefully stop any permanent tightening and/or "stuckness" of his muscles (also called contractures).
Bennett is tracking really well visually and definitely knows when he is home~ his favorite place to be! We laugh that he is a total introvert because he really prefers a quiet house vs. a loud room full of people; but there is a big world out there waiting for him, so we are slowly baby stepping our way out into it.
