Yesterday was a great day! Chloe sat up a lot and even did a bit of coloring and then, with a deep, rhaspy, post-extubation voice, said, "More Wonder Pets Please, Mommy." What a sweetie. So, she was busy and we enjoyed yesterday a lot!

Today: Chloe is still doing well... much quieter today than yesterday. Because she is uncomfortable she isn't taking the kind of breaths she needs to so her lungs are not taking in enough air  making them look a little cloudy but not pneumonia so she has a little mask on that pushes air in gently to make her take deeper breaths. So, today she is resting a lot because of that and she was so busy the last couple of days... they said all is still normal and relative to her surgery adn she is doing great. She's getting higher calories by her pic line adn maybe starting some food tomorrow by gtube.

She's still getting good pain control but that labored breathing is not fun, Great tooshie and urine output, those are good neurological signs adn she kicked and shook her head no when she was getting a catheter so that's a very good sign, too.

baby steps and they said to expect good days and then days that she's not feeling as good; it's all part of the healing process.

Chloe is a different little girl today... yesterday, they extubated her (took out the breathing tube). She was very scared and so were her parents. She had a pretty tough time breathing and needed some fast acting intervention from the PICU staff but she recovered well afterwards and was alert and comfortable about 2 hours later.

She has some wheezing that's pretty standard for the surgery she had and ventilation... she's workin on that, too.

Yesterday, I got to hold her for a while in the chair and today she got to sit in her stroller for a bit. even picked up a marker to color and tried putting a sticker in her album. She's pretty heavily medicated right now so isn't too focused but awake a lot. She's handling pain well, too.

The biggest news: she pooped this morning (on her own) and is peeing without a catheter: both signs of good neuro status. She's also much more responsive to tickles on her feet (docs say this might only be reflexive) but is also been known to move her toes by request twice.. not a reflex! Doctors are saying there is still a "significant" chance that Chloe will get back everything she's lost. We're expecting nothing less from our little miracle who continues to defy medical expectations. Thank you all for your prayers and words of support. Each day keeps getting better because of them.

They are thinking of taking Chloe off the ventilator today. she's very stable and trying to pull the tube out on her own... fighter she is! she's pretty pittiful looking (just like her newborn NICU pictures when she was on ventilator).

She loves getting "lipstick" on; her lips get dry so she gets some Carmex lip conditioner. Makes her nod her head and the little sweetie, smacks her lips afterward just like when we do lipstick at home.

No leg movement today. Docs think she's in spinal shock as the cord messages stopped before they even decompressed her spinal cord. It was very fragile and on the verge of losing function on it's own. We really acted just in time.

Docs also say there is a "significant" chance she'll regain movement and for family and friends to use their connections upstairs to pray for assistance with this. Thank you to all those praying... we know they are helping.

Today we are making arrangements for our Boston trip. Chloe says, "Dr. Emans is going to fix my back... little owie, bandaids,... big presents for me!"

Mimi and Papa brought over a new slide for Chloe! She's been sliding her day away!