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Posted by: Kami E.
Posted at: Wed, May 31, 2017 - 03:54:44
Thank you so much for all the information and positive updates. Can you give us an update on your handsome boy? I had a baby boy on September 12th 2016 that was diagnosed with ks. I would love to know your experience. Thank you in advanced
Posted by: Linda
Posted at: Thu, Feb 25, 2010 - 15:30:16
We've e-mailed in the past. My xxy son is 15 now (and I am in Ft Worth!). Michael is absolutely darling and I have loved watching him grow. Your story is amazing. I have some info for you if you'll send me your e-mail address.
Posted by: Care
Posted at: Thu, Dec 10, 2009 - 05:32:56
Hi Michelle,

It was the urologist that recommended the T (our endo was not familar with it either). There is some debate about wheter or not it works, but we can attest to the fact that it did for us. The primary reason we did it was to give the urologist enough to "work with" during the hypospadias repair. So, check with your urologist and you may get more info.
Posted by: Michelle
Posted at: Tue, Dec 8, 2009 - 15:13:10
Can you send me some information on giving T to young children to "tell the penis to grow"?? My son is XXXY and our Endo has never heard of giving children T prior to getting them started with puberty.

Mom of Logan XXXY -- 8yrs old
Posted by: Michelle
Posted at: Wed, Sep 16, 2009 - 14:39:05
Thank you so much for creating this site. My son is XXXY and will be 9 years old in December. He just learned to ride his bike without training wheels and we are very excited.
Posted by: The-Jazzman
Posted at: Fri, Apr 10, 2009 - 05:08:39
Awwww what a cutie. Thanx for sharing!

Live Well, The-Jazzman
Posted by: Wendy Hadersbeck
Posted at: Thu, Jan 22, 2009 - 16:05:21
Your opening your heart and family for the world to see is so valuable for those with new xxy diagnosis. When I found out my son had xxy there was nothing. Thank you for allowing others to see that their precious little son will be a blessing in their life. Your little boy is so sweet and cute Again Thank you!
Posted by: Lorena
Posted at: Thu, Dec 4, 2008 - 16:50:36
What can I say? Thank you for setting up this blog.

My husband and I are expecting our little guy March 5th. We were told our son would be XXY after the results of our amnio came back. I must say I was devastated. Mostly, because some of the health professionals and special ed school district officials in our city had never even heard of KS.
I was shocked since I was told 1 in 500 children has XXY. So much of the stuff we've read on the internet is outdated information and does such injustice to folks like us.

Seeing your son's pictures brings so much joy.

I have been worrying so much about the baby that I have to stop myself and note that it is not good for the baby.
Posted by: Care
Posted at: Mon, Oct 20, 2008 - 11:03:26
Hi Donna,
I'd love to take credit for this site's layout, but it's part of the design package that Totsites offers. They even have a free package if that works better for your budget. You can get more info at The cool thing is you don't have to worry about hosting or anything!
Posted by: Donna Ginn
Posted at: Mon, Oct 20, 2008 - 10:05:55
Your son is beautiful!
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