In Retrospect
posted on 09/29/2007
Saturday
As I review what I have logged over the last few days, I realize I’ve only hit the highlights. There is so much wonderful and scary stuff that I haven’t even touched on, but I believe the most important items have been documented.
Vince and I know we face challenges in the future and we know that God will guide us every step of the way. We also know that our little boy has an extremely rare condition that is highly misunderstood and is currently associated with a lot of social stigma. Our direction is clear - we are to love our little boy and raise him to love God. We are to open our hearts and minds and learn about this syndrome. We are to teach so that this condition may be better understood. We are to share what we know so that doctor's can better screen for this syndrome and find a cure - if a cure is needed.
I know we have a lot to learn in the coming weeks, but for now God has directed us to rest. So rest is what we will do.
