So, does XXY run in families?

The current medical stance is that it does not. I've researched this for MONTHS. Why, you ask? Because I believe my oldest son exhibits some of the traits of XXY. Let me explain.

For months I have been a member of a listserve with other XXY parents. I subscribe to all age group discussions with the thought that I will be more prepared for Michael's future. When I read posts from the parents of adolescents I find that many of the behaviors they describe sound just like Jacob. I cannot tell you how many times I've read a post that made me think, "That sounds just like Jake." Or, when I read some of the information for the toddler-aged group, I'm reminded of Jacob's todlerhood.

This past weekend I leared that I have an Aunt that gave birth to a child with ambigous genitalia. The baby's gender was never identified as s/he died shortly after birth due to other complications.

So, you can imagine where my mind went . . .

I put a call out to the other XXY parents. Basically, I was challenging this idea that XXY does not run if families. For the first time I heard that, while it is extremely rare, it is not impossible.

Not impossible.

Over the next few days I heard from other parties . . . in one case a man and his cousin have XXY. . . in another case a mom has an XXY and an XYY son.

Clearly not impossible.

I sent a letter to Michael's endo asking to have Jacob tested. I know Jacob is going to hate having his blood drawn. I can't imagine how much this will cost me in terms of bribery. But, I need to know.