JOURNAL Home 2 monthsposted on 11/22/2008 Well to start off we took the family to Sears Portraits to have family/X-Mas pictures done, I can say it has been the WORST experience I have ever had with a Studio and the worst $200 I have ever spent!!! You can call and email and they won't even reply to the issues your having. I say please beware of using them.... Zack has seen 2 of the 3 Dr this week, We know he will not have to have surgery on his testicles BUT will have to be circm. because of medical reasons. Also we have had a few test ran by the endocrinologist, Zack's Cortisol levels are good, we have to wait till after the holiday to find out about his Thyroid levels. But his Sodium levels are high and that is pointing to DI (diabetes insipidus-water diabetes) which is where the body can not retain water, this is one reason why Zack pee's so much. It very dangerous as he has very good chances of becoming dehydrated very easily, he is always very thirsty. Things could be worst. I am glad that his Pituitary is producing at least some of what it is suppose to. BUT this means the Hospital is going to contact me early next week to set up an appointment to admit him hopefully just over night to try to get this under control with medication, then we have to be taught of the dangers that can follow with this. And be educated about this condition. The treatment is DDAVP which can be given in the nose, by pill or injections. We just have to find out which will be right for Zack. On a great note: Zack is now 19.6 lbs and is 28 inches long!!!! He has come so far from the tiny little one I got back min July. He is also in alot of 12 month clothes!!! YAYY go Zackie!!! He is also babbling a lot more, and is now saying mamamama and mom...if he puts the two together of who is who I'm not sure yet. He is now taking his toys and using both hands, switching between hands and coming into midline with them. He is seeing some, but with only 20%nerve tissue we still aren't exactly sure how far or what he is seeing and neither are the Dr's at this point as he is to young to try to figure out exactly what he is seeing. The good news is he IS learning!!!! Also we have noticed that when he is hurt or upset he does want to be held and wants comfort from us. He will lay his head on your shoulder and wrap his little arms around your shoulders, and he calms pretty easy then starts to laugh and babble LOL He knows who we are and cries for us to hold him and cries more if we put him down and that is not what he wants, he rest his head on us when holding him. Which we love!! We was hoping to have pics to post BUT Sears Portrait Studios sucks!!!! |


