Just stopping by to wish Wyatt a VERY HAPPY 2nd BIRTHDAY!!!!!!

We are SO proud of you little man!! You are so brave and strong and you are my hero.  We love you so much, and hope you have an awesome day with Mummy today.  What a 2 years it has been!  It is hard to believe it has been 2 years already, yet at the same time it is also hard to believe that SO much can happen in 2 years!

Wyatt had a bit of a rough week last week, with the pneumonia still hanging on, and trying to get that under control, so they kept him on the antibiotics longer, and he is still on them now.  They also decided last week to change his morphine from iv to oral, so he was really miserable with that for a few days, but he is slowly improving with that. Once they get him settled on a dose that is good for him, and then they are going to change him to methadone. 

That is about all that is new for now, I will try to get some birthday pictures up today for everyone to see Wyatt enjoying his Madagascar cake.

Reminder to eveyone to, that the Golf Tournament is coming up quick, don't forget to contact me for information and registration!  289 404 1021 or wyatts-warriors@hotmail.com

Laura

Hi everyone,

Just thought I would give a quick update on our little man, who is almost at his 2nd Birthday!  Hard to believe!

Wyatt has still been working away at spnding more and more time each day on the home vent and the trache mask.  He is up around 8 hours a day on the trache mask, and about 12 hours on the home vent a day.  This is really great!  Way to go Wyatt!  They continue to increase times on both daily.   The goal is to get him to the whole 24 hours of the day off the hospital vent, and on a combination of the home vent and trache mask.  He is almost there!

Wyatt has been sick for the last week and a bit. He had his usual pneumonia again, as well as a blood infection.  They put him on antibiotics for both, and after a few pretty crabby days, and a change of antibiotics, he was seeming a little better, though not great.  It seems the blood infection got taken care of, but the pneumonia hung on despite the antibiotics.   So now he is on a new round of antibiotics, 2 of them, as well as an inhaled antibiotic that they are considering leaving him on for the pneumonia he always has. Apparently they use this in kids with CF who are also very prone to this, and this helps to ward it off.  We hope that it will work for Wyatt.

Aside from that, he has been a busy boy as usual!  He had another stroller fitting for his new ride, and we are hoping that it will be all ready and set for him to go soon.  He has enjoyed several more walks outside with the nicer weather, and on the cooler or rainy days has still jsut been walking around inside.  

He reached a "milestone", on April 10th, a whole year straight in the CCCU.  It is hard to believe that a whole year has passed in the CCCU, and that he has been in SickKids now for 17 months straight.   All this time, he has continued to show us what a strong little man he is!  Hard to believe that he is almost 2 years old now too!  We love you Wyatt, and are so very proud of you!  

For those of you who contributed to the BMW Toy Drive, we THANK YOU!!  It was a great sucess and we had a lot of fun!  There were tonnes of toys for the CCCU and Cardiac Ward, and we are so greatful to all of you, and to BMW Durham for this.  We hope that many of the kids will get a lot of enjoyment out of them.  For anyone interested, please see the two links below forthe coverage of the day from Rogers TV.  We thank Dr Schwartz for taking time out of his day to come and speak as well. 

Reminder to everyone that the Golf tournament is quickly approaching, Saturday June 6th, and to please contact me at 289 404 1021 or wyatts-warriors@hotmail.com with any questions, and with your registrations.   I hope to see many of you out there for an awesome day of fun, supporting the Cardiac Critical Care Unit and Wyatt.  WE WANT TO FILL THE COURSE THIS YEAR!!!!!!  But we need your help to do it!  Registrations will be accepted only until May 31st. 

I added some new pictures last week, for anyone that hasn't noticed yet, they are in a new folder!  Enjoy!

Link to Rogers shows

http://www.rogerstv.com/option.asp?lid=122&rid=2&src=&cat=1418&pag=1

You will need to go to the appropriate show dates, which are Thursday April 9th, and Monday April 13th.  They are two different shows.  The first show is focused more just on the toy drive ,and the second is myself and Dr Schwartz speaking at the hospital.  I believe the Thursday show is at about 8 minutes into the show, and the Monday one is about 24 minutes into the show.  Enjoy!

I will update again soon,

Laura

Hello everyone,

Just thought I would give a little update on our little man.

Nothing too major to report, he has been doing pretty good, and keeping everyone, especially Lisa, very busy.  He has very busy days between his physio, and trache mask and vent trials, and playing.  He is up to 7.5 hours a day on his trache mask and  9 hours and 15 minutes on his home vent per day.  This is SOOOOO amazing!  He is showing us once again how incredibly strong and determined he is. 

Lisa is now doing his afternoon physio as well, so they are very busy days for her too.  She gets to cuddle him a lot more now, as he likes to be held while he is on the trache mask.  He LOVES to watch tv now, especially the Madagascar movies.  He is a pretty smiley boy, and likes to also smile at the tv too. 
He has gone for two more walks outside on the really nice days, and he enjoys those quite a bit.  It will be really nice when the weather stays good and he can get outside more often. 

They are slowly working him into wearing clothes again, which he really hasn't done since last April, due to him being in CCU and getting fevers so often and so easily.  But he is doing pretty well, and I will try to post some pictures soon.  He even got a present from one of his nurses of some really spiffy new running shoes! 

All in all he has been doing pretty well since my last update, they are also still trying to wean the morphine, but they are doing it extremely slowly and guided by Wyatt's mood and tolerance.   A few days ago he started spiking fevers again, so they took cultures, and he grew pneumonia, so he is now on antibiotics for that, and he is starting to feel better.  He was pretty miserable, and misbehaving quite a bit yesterday, desatting a lot, and pretty low, but today is a much better day, and he has not been pulling any monkey business. 

Wyatt is blowing lots of kisses, and eating his hands a lot now, and has also had the chance to enjoy some delicious cheesecake again.  Like I said, he has been a busy boy!

They are trying to get things prepared to hopefully go home sometime soon, he will be getting his totally modified stroller chair sometime in the next few days, and they can't wait to try that out! 

Easter is just around the corner, and this will be Wyatt's second Easter, and second Easter at SickKids.. but we know that the Easter Bunny will visit him and all the other little ones there, and bring them something special.  Maybe someone will bring him some more cheesecake!? 

That is about all for now, sorry for the delay, but its been crazy!

A reminder to everyone that the Wyatt's Warriors 2nd Annual Charity Golf Tournament is quickly approaching, and that you can sign up or ask questions at wyatts-warriors@hotmail.com or 289 404 1021.  Also, if you are interested in donating or sponsoring, please contact me there as well. 

For anyone who did not see it, there was an article in Metro Newspaper on Wyatt and Congenital Heart Defects last week, please take a moment and read about our famous little Warrior.

http://www.metronews.ca/toronto/Live/article/201758

Also, a quick reminder to everyone that BMW Durham is holding an Easter Toy Drive until this Thursday, April 9th, and then are donating the toys to the CCCU at SickKids in Wyatt's name.  Please drop off your new toys / items to BMW Durham in Ajax, before noon Thursday, or contact me to make arrangements to get them from you if you can't get to the dealership.  They are in great need of toys for the kids, and things like dvd players etc.    We appreciate your support!!!!  There will be a finale at the dealership on Thursday from 10 to 12pm, and anyone is welcome!

Laura

Hi everyone,

Just thought I would give a little update on our little man.  He is still giving out his smiles when he choses to, and enjoying some new treats... He has tried Lime Sherbert this week, as well as chocolate pudding, and he quite enjoyed that!  He is still playing with his balls in his bed, and enjoying the playroom for a little while on most days, as well as going for his walks.  

They have stopped doing his bloodwork evey day, and are now doing it every other day.  They also gave him a nice new bedspot, which is a little bigger and quieter for him, so he has been liking that, and he seems to be sleeping better at night even.  His nurses have been having an art contest and making him all kinds of pictures, so his wall is looking very nice, and we are seeing how talented they all are!

They have also started Wyatt on his trache mask trials again, and he did 20 minutes today.  They are also trying him more on the other vent that he uses for his walks right now, to see how he tolerates that.

That is about all the news we have for now, I will update again soon.

Laura

Hi everyone,

Just thought I would give everyone a quick update on Mr Man.  He was getting kind of crabby towards the end of last week, and Lisa felt he was probably coming down with something, so on Wednesday, they did cultures.  Low and behold, Friday, he certainly was feeling awful, with a fever of 41.  The cultures came back, and he had a new infection in his lungs.  Friday was definately his worst day, with his fever so high, he needed lots of Motrin and tylenol and ice to get it down, but they did, and he has been feeling much better.  He has been on antibiotics since Friday for his lung infection, and it appears that these are helping.  He has still been giving us the odd smile when he feels like it.  He has been going for his walk most days, and seems to be tolerating his higher volume of food with the break, quite well.  He is looking really good, and is even getting another tooth on the bottom. 

That is about all that is new to report for now,  I will update again soon,

For anyone who wants to view the pictures of the Gala that the photographer took, please go to www.lifeshots.ca Click on Slideshows, Click on Wyatt's Warriors, and enter the password, Wyatt

Enjoy!

Laura

Hi everyone,

Just thought I would give a quick update on our little man.  He is still smiling away, and doing lots of fun things with Mummy.  He has been playing with the balls some more, eating all kinds of ice cream, finger painting with paint and with chocolate pudding, and eating ring pops!  He is having lots of fun, and still giving quite a few smiles out.  They have increased his food to 35mls an hour, and he is having a total break of 3 hours a day now, off the continuous food, which makes bath time slightly easier. 
They have been going for there walks most day, and even had a photographer come and do some pictures of Wyatt, since he hasn't been able to go out and get them done.  We are very excited to see them!  Nothing really in the plans for the next few days, just the usual stuff.

I want to take a moment to thank everyone that came out to the gala on Friday night.  We had a completely awesome night, and for those of you who didn't attend, you have no idea what you missed!!!  We had great food, were entertained by a great singer Georgia Higgins, and a fantastic Comedian, Frank Spadone.   We had an amazing silent auction, great door prizes, raffle items, and so much fun, for an awesome awesome cause.  Thank you to everyone who attended, everyone who donated, and everyone who volunteered there time to help out.   I look forward to many more events in the future, and seeing everyone there again, and all together beating CHD's, in hopes that one day no child will suffer through what Wyatt  and so many others have, and that no parent will lose there child to a CHD anymore.  This week I will finish wrapping up with the Gala, and then next week I will get started on the 2nd Annual Golf Tournament.

Thanks again to everyone, and keep those prayers coming for Wyatt.

Laura

Hi everyone,

Just thought I would give a quick update.  Wyatt is still smiling away with lots of smiles for Lisa and other special people he selects lol.  He has been in a good mood, and seems to be very calm and happy.  Today he got to have some fun with balls and got to try a blueberry ring pop!  He enjoyed that and made quite a sticky mess!

The Drs met, and decided that there isn't anything surgically that they can do for Wyatt right now, and so it is up to our little man himself what he does.    So, please keep your prayers and good wishes coming for him on here!

I also want to take a moment to remind everyone that Wyatt cannot afford or tolerate being sick, or any of these viruses or flus or anything else that is going around, so the Drs have asked us to again re-iterate to everyone that only the close family should be visiting right now,and that even we are not allowed anywhere near there if we have been sick, or been near anyone who has been sick, or we are feeling even the tiniest bit not right. 

Thank you everyone for your continued support and prayers, and we will see you all at the Gala Friday night!

Laura

Hi everyone,

Just thought I would give a quick update for now.

Wyatt has had a pretty good week, fairly calm and relaxed, and not much new really.  His food is back up to 31mls, and they started him on a new drug that they hope may help his heart function a little bit, as it is not good.  He had an echo just to establish a baseline for him and where he is at right now. 

The really great exciting news is that Wyatt has started SMILING again!!!  YAY WYATT!!!!!  I am so super excited about that, and can't wait to see it for myself!  We have been waiting a looooong time for those smiles!

Other than that, we are just waiting.  The Drs are having there meeting today, and discussing Wyatt and what if anything, they think they could do, and if Wyatt could tolerate it etc.

I will let you know when we all know.  Please say many prayers that the Drs will have a solution and one that Wyatt will be able to tolerate.  And please pray we get lots more smiles from our strong little man.

Don't forget the Gala is coming up this Friday, please get in touch with me if you haven't already for your tickets.  It's going to be an awesome night of fun for an awesome cause, and we hope to see you all there.  Contact me at wyatts-warriors@hotmail.com or 289 404 1021

Laura