With a very heavy heart, I am writing about Emma, the little one I had asked you to pray for a few weeks back, with the very risky unknown surgery... the same little girl who came through the surgery so well, and who I so happily told you all was doing so well...

Yesterday, she had a very high fever, and Jessica (her Mum) felt she was not herself, didn't look good, and something was wrong.  Late yesterday, Emma arrested.  They did 45 minutes of compressions, and then put her on ECMO.  Lisa sat with Jessica through it all, while they waited for Dan (Emmas Dad) to get there...  He had recently gone back to work since she had been doing quite well...    She was not doing well at all.  This morning she was even worse, and it was discovered that she was bleeding in the brain, and everywhere.  Blood was coming out of her nose, ears etc.  They are taking her off ECMO.  They had done cultures yesterday, and they are already growing, which is leading them to believe this is all from an infection.   Let that be a reminder to every single one of us who steps foot into that hospital.  Lisa is helping Jessica make molds of her hands now.

Please give all your thoughts, prayers, whatever it is you do, to Emma, and her Mum and Dad, Jessica and Dan, now.  They surely need it. 

Emma, you cute little chubby cheeked, Backyardigan loving, little monkey, we will miss you so much, Wyatt will miss you, and I know Lisa will miss you and your Mummy and Daddy.

We are all thinking about you.

XO

Laura

Hi everyone,

I just wanted to do a quick update and let you know where we are at right now....

The plan was to do the trach this week.. either today, or Thursday.. but now Wyatt has a blood infection, and they need that to clear before they will do it.  We aren't quite understanding why, since they did open heart surgery with a blood infection, however, they won't do it, so that is that, we need it to clear up.  He is on the right antibiotics now, so we just need them to kick in and start working.  He has pseudonomis again, and that is what is in his blood as well.  It is coming from his PICC line, and we are not sure yet if it is colonized to the line, or not.  They have done a culture again from the line, as well as a poke elsewhere to try to determine that.  The Drs want to pull the PICC line out, but there are a couple of concerns with that.  First of all, they had SUCH a hard time even getting that line, that they told Lisa when they did that one, that they would not be able to get another one in anywhere else....  If that still stands, that is a big problem, as Wyatt needs his line... his TPN and Lipids run through there (they are too concentrated for an IV line), as well as his heart arrythmia meds (which burn him if they go through IV), among other things.  He does not keep IV's very well, and even they are hard to get into him... So, they did an ultrasound yesterday of his whole body, to try to determine if any of the old blood clots are gone, opening up any new spaces for a line again... If not, they have to decide what to do... because if it is the line causing the infection, they won't get rid of the infection without taking out the line, yet he needs a line... we will see what happens over the next couple of days.  The other concern is the blod clot that is at the end of it.  There hope is that it either A comes out with the line, or B is fastened to the wall inside now, and won't come lose and move.  This is concerning because it sits right above his heart.  They do seem to feel though, that it has been there long enough that it should be attached to the vessell.   He also has three infections in his lungs right now, pseudonomis, enterroccoccus, and another one I can't even begin to spell..  They are all being treated now.

His feeds have been going well, knock on wood.. he is going up to 11mls today, and is at 3300 calories.. they are interchanging increasing volume and increasing calories..   They have been weaning his medaz (sedative) and he was going through some nasty withdrawal for a couple days there, along with the infection, he was pretty miserable.  But today seems to be a better day, so hopefully he is over that part, and they can get back to the weaning, though I don't think it will be tonight.  With the weaning, he has been more awake, enjoying his baths, and watching toys and baby einstein.  Also, being more awake, he does not like being intubated of course, so he has self extubated a couple of times this week, little stinker.    Luckily, they have been able to reintubate both times without too much trouble.  He is just doing his job by keeping his nurses and Drs on there toes!

Lisa has met with the trach nurse, as well as the palliative care team this past week.  The trach nurse was just to give her more information, but she really didn't get any more than she already knew.. and the palliative care team was a requirement, so that Lisa was aware of all that they offer.. and as it turns out, they were not only about end of life care, but also about helping them out for long term care... meaning help get Lisa and Wyatt set up with the rehabilitation services, nursing services etc that they will need when they head home, I guessi n ocnjunction with the social workers etc.  So, the meeting wasn't as bad as Lisa was thinking it would be.  She also got to meet today, with a mum and a little boy who has a trach, just a little bit older than Wyatt, so she got a little more practical information from her as to what it is like living with one, for both her, and her little boy.   Some of it was encouraging, like the ability for the little boy to move around easier, and get his development back on track, and other parts were more discouraging, like being told it takes three people to bath him... so I think it was good for Lisa to meet with them, and Lisa also has friends who have been through it who can help with information for her.

So, please pray that Wyatts infections get under control, and he can get his trach, sooner rather than later.  The sooner he gets it, the sooner he can get on track rehabilitation wise, and the sooner we get more answers as to what is going on. 
Please also pray for our friends Sofia, and her parents Mark and Courtney, as Sofia has been placed back on the transplant list, and is now waiting for her heart.  Just over a week ago, they had been preparing her to go home, so things have been turned upside down for them again.   Please pray she gets her heart soon, and that it goes smoothly for her.                                   Our friend Emma is still doing well, so thank you for the prayers for her as well.

I will update again when we know more about the line and what they are going to do, as well as when we hear when the trach will be now.  Hopefully the ultrasound has shown somewhere else that he can get a line, and things can move ahead soon.   We would really love to get him his trach, het him to Bloorview, and get him HOME for Christmas this year.. Heck we are still waiting for that 1st Birthday Party Wyatt!!!

Reminder to everyone about the upcoming Casino Rama Bus trip, it is Saturday October 4th.. Leaving Whitby at 2:30pm, anyone 19 or over is welcome.  Please contact me for more information at wyatts-warriors@hotmail.com 

Laura

Hi everyone,

The meeting has been and gone, and there has been a lot for everyone to absorb.  I apologize for taking so long to post it, but Wyatt has been keeping us busy. 

Lisa had her meeting with the Drs on Thursday, where all the Drs were present, Cardiology, Dr Van Arsdell, ENT, Neurology, CCU,  Dr Russell, the nurse practitioner etc.  They discussed Wyatt, and all that had been going on, lately, and the big picture.  Basically, the outcome of this meeting was that they did not want to extubate any more, as they felt it was just doing more and more damage.  They told Lisa that her options were to trach him, or to take him off the vent and let him go.   Obviously Lisa does not want the latter, so she asked Dr Humpl to hold a meeting for the immediate family, to explain to everyone the decisions that were on the table, and the possibilities with them.    In getting a trach, it does mean Wyatt would be able to get home, but with ALOT of help and care, and constant 24-7 supervision.   The Dr needed to explain to the family the implications this has, and the kind of support Lisa and Wyatt would be needing.  He went over all the options, several of the possibilities, best and worse case scenarios, and answered a tonne of questions.

Basically, if Wyatt gets the trach, it can go a few ways... the reason for this is we do not know why he needs it still.. there are two possibilities.. the first being that maybe his airway jsut needs to heal, or the second being that its the distal lower compression.  These two things would affect very differently how much and how long he would need both or either for.  He can need the trach and the vent all the time, he can need only the trach, and no vent, he can need the trach, and the vent part time.  He could need one or both for the short term, meaning a few months to a year (this is more likely if it is the airway, and the airway can heal itself)   If it is the distal compression, it is more likely that he would need both and that it would be longer term, as in years.  It is also a possibility that the airway may not heal itself, and he could need reconstructive surgery for that.  Dr Forte would check the airway in 6-8 weeks after the trach placement, and see if the airway was making any progress or not.

With the trach, he would not go from the CCU to 4D, as he used to, he would stay in CCU until all of his issues are straightened out, and then go from CCU to Bloorview McMillan rehabilitation center (for kids) where he would get intensive rehabilitation - physical therapy, physio therapy, etc.  There they would teach Lisa and us how to re teach him as well, physically, and help his neurologic development, as well as train us on how to do everything with the trach, change the trach tube, suction him, connect and disconnect the vent, etc.  We do not know yet how long he would be there.  It is looked at as a transition to home.  Once home he would still have therapy, it would just be as an outpatient, and also possibly right at home.   Lisa will need constant help, as Wyatt will have to be literally watched 24 hours a day.  A nurse is funded for 5 nights a week, but we will have to do the other two nights a week.  She will also need help with regular day to day things, such as someone to go with her to appointments, shopping, etc, as she can't be the only one in the car with Wyatt, she will need help with groceries, cooking, cleaning, laundry etc, as again, Wyatt will need 24 hour a day DIRECT supervision.  We need to get Lisa and Wyatt a new apartment, a new car, etc, all of which are going to need to be easily accessible, and very clean and safe... He will need to be EXTREMELY careful with germs... with a trach he is FAR more suceptible to infection, particularly respiratory infection, and therefore it is VITAL that no one with any type of cold, flu, infection, ANYTHING, be around Wyatt until it has been treated effectively.  That also means if you have been around a sick person, even if you yourself are not sick, you cannot be around Wyatt.  He will be very fragile in that regard, and even moreso because he also already had the compromised immune system due to the DiGeorge.

The trach will allow Wyatt more comfort and freedom in terms of movement that the ETT he has now, does not allow.  He will be able to move around pretty much normally, just maybe dragging a machine along behind him, he will have the freedom to move his head around, and most nice for him (and us too) his cute little face will be free of tubes and wires and tape.  I am sure that will feel heavenly to him. 

AS for what was said at the meeting in terms of Wyatt, I will summarize as best as I can. 

We know that there are a few areas of concern for Wyatt... One being his brain....... we know it has shrunk, due to the lack of oxygen, the laying there in CCU for so long, etc.  There is water around his brain where there should be brain.  There are also several areas of damage in the brain.  We do not yet know how this will affect Wyatt, or how his body will adjust to it.  We do know that the part controlling movement - the Basal Ganaglia, is very damaged, and that Wyatt now makes involuntary movements.  We do not know how much this will affect his ability to move voluntarily, and this is just another reason why he will be getting the intensive rehabilitation.  We do not know how he will adjust in that will other parts of his brain take over for the parts that are damaged, etc... we just don't know and only time will tell.   We are concerned for his airway, larynx, etc...  We know it is severly damaged from all the intubating extubating etc, and that we are hoping that because the trach by passes this area, it will be able to heal.  If it doesn't heal on its own, then we are looking at reconstructive surgery.   We are also concerned for his lungs, as after being intubated so long, he has developed chronic lung disease.  However, this is something that, if we get him off the vent, CAN correct itself.   We have to think about his stomache, as all the feeding issues he have, yet we are hopeful that the GD tube is the answer for those right now.  We have concern for his kidneys as there function is not the greatest due to all the meds and the fluid overload he often has, and of course, last but certainly not least, we worry about his heart... though of everything, at the moment, that seems to be the least of our worries.  We do know that in the future he will need further cath lab interventions, and surgery, but they are more maintenance than anything, and we knew those would be coming.  Again, those won't hopefully be for at least a couple of years.

So that everyone understands, you also should know that Lisa can choose at any time to go the palliative care route.  Due to the heart defect alone that Wyatt has, she could choose that route anytime, now especially with all the other issues, this is always a possibility.  What that means is that if he were on the ventilator, they would remove that.  They would not allow him to suffer, or starve, or anything like that, they would treat any infections, but they would not take any measures to help him to breathe, and would not resucitate him.   They would just keep him comfortable.

We were told that basically if Wyatt had been born in most other places, with the heart defect he has, he would not haveeven been operated on to begin with... even in North America, so we are very lucky.

Since the meetings a couple of other things have popped up, but we don't really have any concrete answers on them yet.  Saturday evening, he appeared to be having seizures.  We are still waiting on an EEG to determine this better, Lisa is hoping for a 24 hour monitor, so that it is more likely to catch one...  It is possible that he is having these now, because the fact that he has brain damage already, makes him more susceptible to them, and one of the meds he is on for sedation right now, also happens to be a drug that is used for suppression of seizures.  They are curently weaning that medication.    Lisa has asked that they continue weaning though, as this is a valuable piece of information that she needs right now... whether these seizures are something that are going to continue or not.   Sunday, he self extubated himself, and they had a heck of a time getting it back in.  It took 8 tries before they finally got it back in.  After that he was very irritated, his heart rate went very high, as well as his blood pressure, his sodium went very low, and glucose very high.  His chest on the left side was swollen, and you could see his heart just pounding away.  He was making his involuntary movements a lot more, and he had a fever.  They gave him some more sedative, and he finally settled down in all aspects.  He had a good rest of the night, and so far today has been ok.

They have been doing intensive physio with him working on his lungs, trying to get the secretions out.  He has been awake alot more.  His feeds are going well so far, and he is up to 10mls an hour, and today they are upping the calories. 

Lisa was to talk to Dr Forte today about when they would be doing the trach, but Wyatts White blood count and CRP are up today, which is indicative of an infection, so they have cultured him and started antibiotics for now.  If the cultures come back negative, they will assume all this was from the trauma of yesterday.  The trach won't be done with an infection, so hopefully he does not have one.  As soon as they know he is clear, they will go ahead with it.   Lisa has given it all alot of thought, and wants very much to give him this chance.  It is possible that this may be just what he needs in order to heal other parts of his body.  We have to all stay positive and hope that this is the case.  When we asked Dr Schwartz if these seizures should have any effect on her decision about the trach, he said absolutely not, so trach it still is.

They are going to continue weaning the medaz, and increasing food, rotating calories and volume.  We wait to find out when the EEG and trach will take place.

I would like to make sure that everyone truly understands what kind of decisions have been made here, and that we are here to support and encourage Wyatt and Lisa, and to offer anything other than that is quite simply unacceptable, and honestly, won't be taken kindly, and in fact, just simply won't be tolerated.  This was a very difficult decision for Lisa to make, as I am sure you can all appreciate, and we need to do nothing but offer her love and support and encouragement, for her and for Wyatt.  Wyatt has fought this long and hard for us, we can't imagine he would want us to not do the same for him.  We need to give him this chance.  I hope everyone can understand and appreciate and accept that.    On the flip side of that, if there ever comes a time that other decisions need to be made, I will ask and expect the same discretion from all of you.  This has not been an easy road.

Thank you all for your love and support, and I will keep you all up todate.  It took me a long time to write this one, and I am really hoping I haven't forgotten anything or left anything important... I am sure if I have, Lisa will call me later to tell me about it!  Seriously though, if I have forgotten anything, I will just add it in with the next updates.

As soon as we have word on when EEG and trach are happening, I will update.

The actual putting the trach in, is apparently not too bad of a surgery, though it is still a surgery, and means anesthetic, and being that he does have cardiac issues, surgery is always risky,  and recovery will be painful for a couple of weeks, so he will be back on morphine etc, but after that, it should be a much better road.

Please keep saying many prayers for Wyatt and Lisa,  and thank you for your prayers for Emma, she is doing quite well.

Laura

Hi everyone,

Well,  Wyatt has been a busy boy again the last few days.  They got his feeding sorted out, in that they put in a GD tube, which is in the Duodenum, basically right in between being a GJ or a G.  Hopefully this will be the answer for his tummy troubles, reflux, and won't cause him to aspirate anymore.   He is only getting 3mls an hour, but at least he is getting something now.

They extubated Wyatt on Monday morning.  He did really well at the beginning.   He got to have a nice snuggle with Lisa, not needing anything at all other than a little bit of blow by oxygen.  He was breathing pretty good, a little bit laboured, but not more than they would expect.  His color was good, and he was just all around looking good.  Later in the afternoon, they got him wound up because they needed to do bloodwork, and his line had stopped working so he got upset.  At that point, they put him on CPAP, the darth vader type mask thing on his face.  He did very well with this, and they were able to wean the settings back down on that very quickly.  There plan was to leave that on him over night, and then possibly take him off in the morning (Tues)  On Tuesday morning, he was still doing well, though there was a little bit of a debate as to whether he should come off the CPAP, or be left on for another day to rest.   They soon had there minds made up for them, by Wyatt himself, as he started desatting alot, down into single digits again, and then had to be reintubated.  The reintubation went fine, and he slept alot afterwards.  Dr Forte seems to think that this is happening due to the larynx being damaged, and not working properly.  It seems to be the general consensus that he will need a trach.  If only the larynx is causing the problem, he would "likely" need it for a few months to  a year, while the larynx healed... if it was the larynx AND the compression causing it, there is no way to know how long he would need it.  If it is just the larynx, he may not need the vent as well, just the trach, but if it is the compression too, he would likely need the vent too, again, no idea for how long.

There is a Dr meeting with Lisa tomorrow, to discuss everything, and what the plan is now, and explain everything to Lisa.  Lisa is still not sure about the trach, so hopefully she will get some more information about it so that she can make proper informed decisions.

Please say many prayers for Wyatt today, for a good restful day, and for a positive and productive meeting tomorrow.

I will update again after the meeting.

And for those who were asking, Emmas surgery went well, and she is doing better than they expected right now.   Thank you for the prayers.

Laura

HI everyone,

So far the medaz wean is going well.  They weaned him half a mcg the Tuesday night, and he was tolerating that well yesterday, and was awake a lot more.  He was also calm, and having a good day / evening.  There plan was to wean another half mcg last night, so we will see how that went over today.  It was nice to see him more awake, and he watched his baby einsteins yesterday as well, in fact he watched 3 of them, so that was excellent. 

There was more talk last night about his G tube, and what to do about it.  He is still not eating, it has been a few weeks now.  They are trying to decide whether they need to do a G, GJ, or GD.. which will be the best for him... they all have there pros and cons, so it is a game of trying to figure out which cons Wyatt can handle best.    They are talking about giving him a tiny bit of food, like maybe a ml an hour or something in the meantime, just to get something in his belly, to protect the stomache lining from getting irritated by the acid in his stomache, which is really all thats in there now, which can also cause ulcers, so they are going to look at that further today. 

They area weaning his vent settings still, but very slowly, so now he is at a peep of 8, pressure support of 10, and oxygen of 48%.  Hopefully we will get him to extubatable soon. 

Dr Forte will be back on Tuesday, and hopefully all the Drs will be having a meeting then to discuss the plan of action from here.

Please pray for Wyatts friend, Emma.  She has been in CCCU with Wyatt pretty much this whole time he has been there, and she will be having a surgery tomorrow that is very risky, and that Dr VanArdsell has never done before.  They have no choice but to do the surgery, but it is not very promising.  Please say many prayers for her.

On a happy note, Wyatts friend, Sumair WENT HOME YESTERDAY!!!!!!!  This is amazing news, and we are SO happy for them, and we had a chat with Wyatt to follow in Sumainrs footsteps.  WE hope we do not see Sumair back anytime soon unless it is a scheduled visit.  WAY TO GO SUMAIR!!!!!

I will update again soon.

Laura

Hi everyone,

So we are still playing the waiting game. Wyatt is still on a high ventilator settings and Damian his favourite fellow has talked to the team about weaning things slowly and not pushing Wyatt because he pushes back. Wyatt had a chest CT last week and it showed that his heart is working Great, but it also shows more areas of collapse then they can see on his x-rays and collaterals wrapped around his airway. Because of the collapse the physio therapist Jamil is doing a more aggressive treatment with Wyatt. They are trying to get him up in his chair more and just moving more in general. They are also trying to get him to cough more so they can suction out the secretions that are hiding.

They took away all his antibiotics last week because his white blood cell count and crp were down and he has been on strong antibiotics since April which is not good for him if he doesn't need them because it can create a super bug. He did well for a day and then the infection markers started to climb again, so the second day they started him on two lower class antibiotics and have recultured him again from head to toe a few times and nothing has grown anywhere except on the swab from his g-tube site. The fellow wanted to stop his antibiotics because of the negative results but Lisa pointed out that his crp and wbc are coming down and the antibiotics shouldnt make a difference if there is no infection, maybe it was missed. The staff agreed and they will do a 7-10 day course.

Wyatt has been opening his eyes alittle bit more lately and moving around more, but with some concern about his movements and the fact that he is not fixing and following. Lisa talked to the Dr's about it and they said it could be the med's he's on and we are just noticing it more because he's more awake but they will look into it more and order some repeats on tests he had before. The dietician ordered some special blood work to see how he digests fat because he does not seem to be doing it very well, we will get the results on Wednesday.

Wyatt still has a foly catheter in place of his g-tube and they are trying to make a decision on weither he should go back to a gj-tube or g-tube. His last tests showed he was still refluxing badly and his vocal cords are not moving to protect his airway but there is the risk of him having intusseption again which is painful and risky or risk of aspirating with a g-tube. They have lots of decisions to make and are going to have a meeting with all the doctors next week when Dr. Forte (ENT) gets back from vacation.

They also started weaning his medaz, which is one of the drugs he is on that makes him so sleepy, so we will see how that goes, if he tolerates it or is super cranky.  They will go as tolerated by Wyatt.

Wyatt would like to ask everyone to pray for his friend Emma as she has to go for another risky surgery in the next week or so. On a happier note Wyatts buddy Samir went upto 4D last week and is loving it.

Please continue to pray for Wyatt and send your love his way, he needs all the help he can get.

Hi everyone,

Well, Mr Wyatt is as usual doing things his way...  We were hoping that today would be the day that he would be re extubated again, but Wyatt thought differently, and his lower left lung collapsed again, due to the tube being in the wrong position, so they had to adjust the tube, and are now waiting for his lung to reinflate before they will try extubating again. 

His bronch the other day showed that the stents are working, but his upper airway is looking worse (more eroded).  So after talking with Lisa, decided to try extubating again, and see what happens this time.  They will keep him alot more sedated after extubation, in hopes to not upset him, and then see how he does.  If this time does not work, they are talking about doing a tracheotomy.  This is not a good option, and we really do not want this.  This would mean he may even be able to go home, even on a vent still, but would not be a good quality of life, on the vent.  They cannot, of course, tell Lisa if he will or will not get off the vent, or how long he may need it and so on, so it is a big decision.  The Dr who would do this is on holidays right now until September, so Lisa has a bit of time to think about it, and to see what Wyatt is going to do in the meantime.

They have not done anything about his feeding tube yet, so he is still not eating, just getting his tpn and lipids.  He is not awake very much.  He is up a bit on oxygen today, but that is likely due to the collapse in his lung.

That is all I know for now, but will update again when I know when they are extubating again.  Lots of prayers for a successful extubation soon for him and Lisa please.

Also, remember everyone, Casno Rama bus trip coming up October 4th.  I expect to see lots of you there, show your support for Wyatt and the other kids like him, its only $30 a person!    Contact me for more info!             wyatts-warriors@hotmail.com   Wyatt is counting on YOU!

Laura

HI everyone,

So, it has been about a week since my last update I believe, and it has been a bit of a rollercoaster of a week.  He had a pretty rough week last week with his infection, trying to fight it, having some really high fevers, up as high as 41.8 degrees.... they had him on cooling blankets and so on, his white count and crp were both very elevated and so on....and finally he seemed to come out of it.  He had a pretty good weekend, rested well, and got right down on his vent settings.  He was having some big issues with his G tube leaking, so they stopped feeding him again, and eventually wound up pulling the G tube out, and just placing a smaller foley catheter tube in its place for the time being.  They want the hole to seal up a little, around the outside, so that it is a little smaller, and then they will decide what size of a tube to put back in.  In the meantime, he is still not eating, but they have of course increased his TPN and Lipids. 

He did very well with his vent weaning, and on Monday they decided that if he tolerated that day and night well, they would try extubating again on Tuesday.  So Tuesday morning, around 11am, they did extubate him, and he did quite well.  They had him in the oxygen box, and he was at first getting 80% oxygen, and satting in the 80's, and through the course of the day, even got down to 60% oxygen, and was satting about 90.  EXCELLENT.  Through the evening, his sats got a bit lower, and late that night, they wound up partially re intubating him... nasally to throat intubated.  Well, Wednesday morning, bright and early, he had to have his regular x ray to check his lungs, and despite the fact that they had given him extra sedation before hand, he got very wound up and upset, and they could not get him settled.  He was desatting lower and lower, and got down as low as 3, YES 3.  They decided then to reintubate fully.   They had a really hard time getting him re intubated, as his airway was extremely swollen.  They could not get it in through his nose, and wound up having to put it through his mouth again.  Wyatt does not like this at all, so they have had to keep him pretty sedated ever since. 

His left lung collapsed again, we are not sure if it was before the freak out or after, but once they reintubated him, it reinflated quite quickly, and by the afternoon, it was looking much better.

He was very asleep yesterday, in fact he did not wake up at all.  He barely even moved.  Lisa spoke to Dr Bohn and they planned a bronch for today.

He went in for his bronch this morning, after a good night, and we are just waiting now for the results of that.  Then they will decide what to do from there.  I know Lisa would like them to give him another chance at extubation next week.  It is very frustrating, especially since he did so well all day, its just when he gets upset that causes the problem, but of course, you can never guarantee him to never be upset, so this poses a real problem.   It seems that the problem is with the upper airway somewhere, somehow, we just don't know what or where yet.  Hopefully the bronch will give us some more answers, and hoepfully we will get them today. 

I will update again when we hear some news and have a plan or somewhat of one anyways...  Please keep Wyatt and Lisa in your thoughts and prayers, as always, as we really need Wyatt to get better.  We don't want him to have to go through another thing.  We jsut want him to get better and get off the vent.

On another note, I wanted to finally let everyone know about the Golf Tournament.  For those who don't know, The 1st Annual Wyatts Warriors Golf Tournament was held June 7th this year, at Newcastle Golf and Country Club.  It was a great day, beautiful weather, and a great turnout.  We had lots of fun, some great food, golf, and prizes.  As most of you know, we had the WestJet tickets as a prize, and just recently did the draw, and that was the hold up for the announcing of how much we made at the tournament, as we were still selling tickets for that.

WITH YOUR HELP, WE RAISED OVER $10 000 !!!!!!!!!!!!!

THANK YOU AGAIN TO EVERYONE WHO CAME OUT, OR IN SOME WAY CONTRIBUTED TO OUR EVENT, WE COULDN'T HAVE DONE IT WITHOUT YOU!!

The proceeds are being divided between Wyatt and the SickKids Foundation.   We have helped make a difference in not only Wyatt's life, but also those of many other CHD children, and I thank everyone for there support.

We look forward to seeing all of you again next year at our 2nd Annual Wyatt's Warriors Golf Tournament, and at other events we will have throughout the coming year to help the hospital and children some more.

The next event we are having is a bus trip to Casino Rama on Saturday October 4th, leaving Whitby at 2:30pm.    Cost is $30 per person, and includes a buffet dinner and your bus trip to and from the casino.  We will spend 5 hours at the casino, and then head back to Whitby.  Once again the proceeds will be to help the SickKids Foundation and Wyatt.

Thanks again to everyone, and I will update again soon,

Laura