Hi everyone,

Just thought I would do a little update.  Not too much new going on right now, Wyatt is just being kept sedated for the most part still as Dr Forte does not want him moving around still as to let the trache site continue to heal.    Dr Forte said he will "probably" do the first trache change at about 3 weeks.... Usually it is done at 1 week, but we know Wyatt, and he likes to take his time.  In the meantime, they are working on some other things, like working up on his feeds... he is at 15mls/hr now, and 3700 calories, and he is tolerating that fine so far.   They are starting to wean some of the meds he has been on for a long time, like Chlorpromazine, which now he is just pretty much on because he has been on it so long, and is really doing nothing for him now, so they are going to wean that every 72 hours, as well as weaning the medazolam.   There are many unkind long term effects of the meds, so we need to get him off of them.  He is on more morphine for the pain right now.  He gets boluses of morphine and or chloral for when he is unconsolable.   He still has quite a leak around his trache, and so his vent settings are set quite high, but he is not really getting all that it appears he is.    His o2 requirements are up as well, and this seems to be because he is unable to cough, seen as he is sedated, so he can't cough up the secretions from his lungs high enough for them to be able t suction them all out, so they are building up in his lungs.   This has caused some collapse in the left side again, and also is meaning he is needing more oxygen. His sats have not been great.

He got a blood transfusion on Tuesday, which seemed to help his sats at first, but now he is growing a new pseudonomis infection, and his sats have been worse again.  He is on antibiotics, but clearly not the right ones, so they are just waiting for the sensitivity tests to come back to change the antibiotics, hopefully today.  He was looking very pale last night.  They also took a urine sample to culture it too and make sure there was no infection there.

They have had a little bit of troubles with his line again, first it was not working, and then they got it working, but it is sluggish.... they have not checked it, but we are thinking it probably means another clot.   Also, Lisa had noticed that his sats were picking up a lot crappier on his left foot than they used to... so, now she is wondering what is going on in his leg, as this used to be the most accurate reading, so she was going to ask Dr Schwartz today about checking for clots etc. as this was the leg that they had put the femoral line in the other week when he lost his other line, so possibly a blood clot there as well?  Hopefully not. 

I think that is about all that is going on right now, just more of the waiting game.  And getting this infection cleared up again.

We are looking forward to our Casino Rama Bus Trip on Saturday, we are looking forward to seeing everyone there!   There are still a few spots left for anyone who wants to sign up last minute, just contact me at              wyatts-warriors@hotmail.com   It is $30 per person, and includes your bus ride there and back, and a buffet dinner.    Anyone is welcome as long as they are 19 or over!

I will update again soon,

Laura