Hello everyone!

Well, it is almost Christmas time again, and I thought I had better update you!  Now that Wyatt is doing better, I am going to go back to writing from Wyatt's perspective, much more fun!

So, we are still here, in CCU, and we have been in the hospital for over a year now, with the exception of a couple of days that we had thought we had escaped last January...  We are pretty bummed out that we are here for Christmas again, and I really really hope that next year, we will get to be home with our family.  I know that we will still have a good time though because we have friends here now, and our family will come to visit...  My Uncle Colin will be staying over with us Christmas Eve, and Mamma and Babboo will be coming down Christmas morning to make breakfast, and then Auntie and Uncle John and Sean and Eric and Gabby will all be coming with a yummy turkey dinner, and we will hopefully all get to go downstairs for that, and my friend Steve, my RT will come and my nurse for the day too, and hopefully some of my other friends too.  I know we will have a good time together.  I am not sure when the rest of my friends and family are coming, but I am sure we will see them over Christmas too.

I have been a busy boy, going on my mat everyday for about an hour, trying to lift my head.  I have been doing very well with it, and when I decide I have had enough I just fall asleep!  I get to go for walks most days, as long as the Nurse and RT are both able to come with me.  Sometimes if the RT is not available, we still go for a smaller walk just around the Unit.  Last weekend I got to go for a walk with my cousins, Sean and Eric, which was really exciting, since I really haven't been able to visit with them since last April.  They were pretty excited I think and took turns pushing my stroller. 

I am still working on my medazolam wean, but I am getting down there pretty good.  At the same rate, I will be off the medazolam in 2 weeks.  The next one then will be the morphine, and then clonidine.  I am doing pretty good with it, I get a little cranky sometimes, but overall, I am handling it quite well. 

I have been having some trouble with my eyes, and so the eye dr and the plastics people came to see me.  I had been itching5 my eyes like crazy and they were getting goopy etc, but there was no infection.  It turns out because my cheeks are so chunky now, they are forcing my bottom eyelids to turn in, which of course is very irritating, and why I am itching at my eyes like crazy. Plastics suggested surgery to fix it, but Mummy said no, as once my cheeks go down a bit, this SHOULD correct itself.  She did not think I could tolerate another surgery right now, especially when it is not necessary.  So, for now they put a cream on my eyes to help with the itching so that I stop scratching up my face!

I am up to 3, yes 3 HOURS A DAY on my trache mask, which means OFF the vent!!!!  They continue to increase the amount of time every couple of days in 15 minute increments, and they are hoping to have me able to stay off it all day and only need it at night!  This would be great!!! 

I had my echo late last week, and Dr Russell wants me to have a CT scan to get a better picture of my heart, and what is going on in there right now.  That should be happening in the next couple of days.  We know that there is some narrowing, but she wants a better look.  Mummy is hoping that they will also take a look at my airway etc while they are there.  We will keep you up to date when we get results. 

The plan right now for me seems to be that the end of January should be when I move  to Bloorview, provided all things stay on track as they are.   My new stroller should be here any day now for me to try out, and I am excited about that.  My family is still doing trache training every week, and I am still behaving beautifully for them every time!  I am fighting my usual pseudonomis infections as well as a couple other things, but seem to be past the worst of these ones, and am not feeling too bad.  I am awake a lot now, and keeping my Mummy very very busy.

I am sad to say that we lost another little one of my room mates this Sunday past, Jayanna.  She was a very sick little girl, 8 months old.  We are thinking of her.

Since it is the Christmas and cold season, we would like to remind you to please stay away if you are sick, or have been around anyone who is sick.  Little ones like me are very fragile and cannot afford to pick up any more germs.  The general rule is 2 weeks of healthiness before you can see me!  We love to see you, but it's not as important as me and my roommates staying as healthy as possible!  And, in keeping with that, lets also remember that I am in the Critical Care Unit, and that visits are great, but only 2 people are allowed at a time, and we need to keep it to family and our close friends.  Everyone else can meet and visit with me when we go home!  It is for all of the kids here health!  We know you understand!

That's about all for today!  Please remember that my Auntie is planning a Gala for February, for me and the Critical Care Unit that has taken such amazing care of me.  She is working really hard, and she wants me to tell you that she promises you an amazing fun evening!  There is going to be a singer there, Georgia Higgins, and the comedian, Frank Spadone!  You won't be disappointed with the 5 course meal, open bar, or silent auction either!!  Please come out and have a great time, while helping all of us CHD kids!   It is $100 per person, and you can contact my Auntie  Laura for more information at

wyatts-warriors@hotmail.com or 289 404 1021.

She would also like to tell everyone, that there are two wonderful people, Jack and Abby, who have a jewellry store, in the Whitby Mall, called GRAZIELLA FINE JEWELLERY.  These wonderful people are taking part in our gala by donating an amazing silent auction item, but even more important than this, they have been so amazingly kind, and set up a donation box in there store, for me, and whatever gets donated through that box, they are going to match, and also donate!!!!    They sent out cards to all of there customers to tell them about it, and we are SO greatful to them.  PLEASE, if anyone wants/needs jewelry, go see them, because not only do they have beautiful jewelry, but they are beautiful wonderful people, and we would love to help them out the way they are helping us.  Please give them your business.  You are also able to purchase Gala tickets through them.   There website, if you'd like to take a look, is WWW.GRAZIELLAFINEJEWELLERY.COM  please take a look, they truly do have beautiful stuff.

That's it for now, I will update again when we get my CT scan results.  Have fun getting ready for Christmas!

Love,

Wyatt (and Auntie)